Made a new friend...

When I was out shopping for shoes for Mykah the other night, I also made a new friend. There's a girl who works at Fairview who is a Little Person, and I've had so many questions. She was happy to speak with me, and she even gave me her number if I have any other questions. She's about my age, and she's so nice. She was thrilled to meet Mykah, and happy to answer all my questions.

Adventures in baby shoe shopping...

I went to Fairview last night to do some shopping. I had to get a gift for a friend, and I had to buy shoes for Mykah. It was pretty funny trying to find shoes to fit him. I went to Panda to get his feet measured, and to see if I could get his shoes there. The smallest pair they had was a size 2 for babies, and it was way too big for him. So, the sales person told me I should check at Brown's... well, that wasn't helpful either as the smallest baby shoes they carry at Brown's are size 3. I finally found a pair of suitable shoes (I hope) at Payless...size 1...very tiny and unbearably cute. Hopefully, they will be suitable... it was the only pair in Mykah's size. So, at least now he has shoes for when his orthotic is ready... I think I'll get the call from J.E. Hangar next week.

Dwarfism...or Skeletal Dysplasia

I have been doing research on Dwarfism, also called Skeletal Dysplasia. First of all, I had no idea there were so many different forms of dwarfism...over 200 different conditions...wow!

I've been researching it, because of Mykah's growth and development delay...they will be checking him for dwarfism. Now, I know that only a doctor will be able to diagnose for sure, but I'm starting to wonder due to a few factors.

1. has dropped under the 5th percentile growth curve
2. his head circumference is in the 50th percentile
3. he was born with misshapen feet (one clubbed, and one with a reverse arch)
4. his wrists seem double-jointed (they snap when he moves them quickly)
5. he has wicked "hitch-hiker's thumbs"
6. he's extremely flexible (he sleeps with his feet up at his ears)

The most common form of dwarfism is , Anachondroplasia and that is usually very apparent right from birth. But there are other forms that are not really detectable until a child starts dropping off the growth curve (within the first couple of years of life)... Hypochondroplasia for one

Bleh...

I saw my doctor on Monday, and I finally consented to try the Lithium. I'm tired of having unpredicable mood swings, and am hoping that the Lithium will have the effect my doctor seems to think it will have. My body is protesting slightly to the new meds...I feel dizzy and a little nauseous...I really hope this works.

More consultations, more tests...

Well, yesterday was a very full day. Mykah had his regular check-up for his feet at the Shriner's. His left foot (the one that was clubbed) is doing great. His right foot (the one that hasn't had treatment so far) is some kind of "Torsal flexion" can't remember the exact term the doctor used... any way, long story short, he will need to wear a special arch support during the day to help correct it. His feet and shoulders have grown a little, so he needed new night time shoes and a new bar for the shoes (for an idea of the type of shoes he wears at night, click here.)

Now, the less pleasant news is that I put him on the scale at the Shriner's, and he's only up to 16lbs 14.5 oz. Also, the doctor who treats his feet wants us to see the Geneticists at the Shriner's for a consultation...to find out why he's under weight, and why he's behind in his physical development (gross motor skills)

Stupid ISP...

So, I haven't been able to blog for a couple of days. I've been having trouble with my Internet Connection; apparently there's a lot of resistance on my line, and they have to do some tweaks and tests...blah, blah, blah. I've been having problems ever since I got my new modem, but it's just been getting progressively worse. I guess whatever they're doing to fix it is having some effect, because today I actually managed to be able to download something, and I'm actually able to surf the web at a fairly reasonable speed...still not what it should be, but much better than what I had ended up with before calling tech support. Anyway, I'll see if this has any effect, and if it doesn't improve drastically, I am sooooooooo switching over to Videotron!

Where did yesterday go?

So, I didn't really accomplish anything of substance yesterday; I think I managed to wash a couple of dishes and clean off the table...that's it. In fact, I'm not even sure what I did do yesterday...it's a blur...Well, I slept until almost 10:30, blogged, got Zach out of bed, fed him, and set up the Dora DVD for him...but other than that, I can't really remember....strange... I do know that I was very tired yesterday, and put Zachy for quiet time in his room around 3pm...then I was abruptly awaken at 5:30 by my husband in a panick because he didn't know I had kept Zachy at home, and he thought I was late picking him up. He scared the crap out of me!!! He relaxed when I told him Zach was in his room. Then Gilles had to go out to his mother's, so I was on my own with Zach (Mykah's at my Mom's).

Anyway, Zach fell asleep on the couch around 8PM, and I carried him to bed, then...I don't remember. Gilles got home around 8:30, and we spent some time talking and watching TV.

This morning, my alarm was set for 6:30AM...guess what...I had to get up at 5AM, because Zach was wide-awake and full of energy...oh well... had good strong coffee, and got to work by 8AM.

Today's plans...

Well, I was supposed to go to work today, but after having to wake up with Zach at 3AM, and him not falling back to sleep until 5AM, the plans have changed. Also, his schedule is now all messed up, so I'm keeping him home today. That way, he'll skip his afternoon nap, and go to bed, hopefully, at a decent hour tonight. So, if he cooperates by being a nice little boy today, here's my to do list.

• Laundry (wash, dry, fold, AND put away)
• kitchen counters (clear off junk and wash)
• kitchen table (clear off junk and wash)
• dishes (wash, dry, and put away)
• wash dish rack and mat
• bleach and wax the sink (yeah, I know this one sounds strange, but I have a white porous sink that looks very grungy if not bleached every once in a while. The wax is to keep it from getting stained again too quickly)

That's it to start. If I can get all of that done, I'll be happy. I'd also like to start work on my husband's christmas present. I'm making a fleece shirt for him. I would have started earlier, but I couldn't get the sewing machine working...my Mom came over on Sunday and showed me how to fix it. I had it threaded completely wrong; but to my credit, my mom said that it's a finnicky machine and is set up all backwards anyway (it's a really old machine). But, once threaded properly, it sews like a dream, and hopefully I'll end up making something that at least resembles a nice shirt-- it's my first sewing project. ha ha... wish me luck.